By Yael Hashiloni-Dolev
This publication offers the findings of a learn into the social shaping of reproductive genetics in Germany and Israel, enormously fascinating social settings, which percentage a worrying heritage.
Based on quite a few empirical fabrics (including in-depth interviews with genetic counsellors and survey info on their practices and evaluations, in addition to research of felony, spiritual, specialist and media texts), the learn unearths dramatic ameliorations among the best way that the German and Israeli societies handle the query of a lifestyles (un)worthy of dwelling: whereas in Germany, social, cultural, non secular and felony stipulations limit the choice of embryos in response to prenatal analysis, in Israel they strongly motivate it.
A shut comparative research of the ways in which those societies deal with the fragile stability among the standard and sanctity of existence illuminates the debate round reproductive genetics in an unique and provocative approach. The learn is additionally cutting edge in its use of latest social thought about the politics of existence in comprehending the variations among societies located at contrary extremes of their adoption of reproductive genetics. It therefore bargains an unique cross-cultural dialogue referring to present-day techno-medical manipulations of existence itself.
‘This is a distinct and brave e-book. Yael Hashiloni-Dolev studied the sphere of reproductive genetics in Israel and Germany, and located out that whereas in Germany social, cultural, felony and non secular stipulations limit the choice of embryos in keeping with prenatal prognosis, it's strongly inspired in Israel. This unforeseen discovering is brilliantly analyzed via the writer. hence this wonderful booklet needs to be learn and mentioned by way of social scientists, human geneticists, genetic counsellors, bio ethicists and clinical students.'
Benno Müller – Hill, Dr. rer. nat. em. Prof. on the Institute of Genetics of the college of Cologne, Cologne, Germany.
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Extra info for A Life (Un)Worthy of Living: Reproductive Genetics in Israel and Germany
Most non-English speaking counselors in Germany have been educated in the former East Germany, or in other East European countries. 4 As East Germans are known to be more secular, more accepting of abortion and also more directive in their counseling (Cohen, Wertz, Nippert and Wolff, 1997), this difference could not be accounted for in my research. THE TEXTS Apart from collecting quantitative data and interviewing, this study is also based on analyses of texts. The majority of the textual materials studied in this work are legal ones such as abortion laws, embryo protection law and court decisions concerning “wrongful life” suits.
Additionally, after the war, human genetics as a scientific discipline was scarcely represented in medical school curricula (Nippert, 1998). The effects of this lack of medical genetic education can still be felt today. Writing for a special supplement of the European Journal of Human Genetics, comparing medical genetics in 31 countries, Harris and Reid mention that in Germany, in the late 90s, access to genetic services was still limited by doctors’ lack of genetic knowledge (Harris and Reid, 1997).
Furthermore, in 1987, a Bundestag committee appointed in order to discuss chances and risks of gene technology (Bericht der Enquete-Komission “Chancen und Risiken der Gentechnologie”, 1987) mentioned a shortage of genetic counselors in Germany. Similarly, in my own interviews conducted in the summer of 2001, heads of genetic institutes and clinics, private and public, complained about a lack of younger-generation geneticists. Human Genetics in Germany from the 1960s onwards In the 1960s and early 1970s only a few departments of human genetics offered genetic counseling, while counseling centers did not exist at all in Germany.
A Life (Un)Worthy of Living: Reproductive Genetics in Israel and Germany by Yael Hashiloni-Dolev